2017 TASH Conference has ended

Each year, the TASH Conference brings together a diverse community of stakeholders who gain information, learn about resources, and connect with others across the country to strengthen the disability field. This year’s conference theme, “Still We Rise for Equity, Opportunity, and Inclusion,” shows the resilience of individuals with disabilities and their families across the lifespan. Conference attendees will celebrate their passion for disability rights, civil rights, and human rights while exploring inclusive communities, schools, and workplaces that support people with disabilities, including those with complex support needs. Return to TASH website.

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Thursday, December 14 • 4:30pm - 6:30pm
Self-determination in Health Care at School LIMITED

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Limited Capacity seats available

Data presented in this research presentation is part of a larger multiple case study that examined beliefs about and the involvement of students with intellectual disabilities and complex health care needs in their specialized health care at school. Nine cases were studied that included the following participants: focus students with intellectual disabilities and complex health care needs and their respective parents, special education teachers, school nurses, and 1:1 nurses or paraprofessionals. This research presentation is focused on findings specific to self-determination in health care at school. These findings were (a) students can realize self-determination in their health care through partial participation in their specialized health care procedures, self-reporting health issues, and making choices (b) school personnel and parents valued student self-determination in health care but were unsure how to teach and/or support self-determination in students with the most complex support needs; (c) students who demonstrated self-determination in their heath care were perceived and observed to safeguard their own health, exhibit self-confidence in their health care, and positive social-emotional adjustment to their health care needs; and (d) self-determination in health care at school was perceived to be associated with improved quality of life and adult outcomes for students, as well as decreased caregiver responsibilities and stress reported by parents. This presentation connects with the TASH theme because self-determination in health care is essential to resiliency in this population, who generally requires continuous and intensive direct health supports and medical technologies. Self-determination in health care, including self-care and health advocacy, enables individuals with disabilities to realize their basic human rights to exercise control over their bodies, be independent, and experience quality of life across their lifespan in inclusive settings.


Sarah Ballard

Postdoctoral Fellow, University of Illinois at Urbana-Champaign
avatar for Stacy Dymond

Stacy Dymond

Professor, University of Illinois at Urbana-Champaign
Stacy Dymond is professor of special education at the University of Illinois at Urbana-Champaign. Her research focuses on curriculum issues related to educating secondary and transition-age students with severe intellectual disabilities in inclusive school and community settings... Read More →

Thursday December 14, 2017 4:30pm - 6:30pm
Imperial Ballroom, Salon A 265 Peachtree Center Ave NE, Atlanta, GA 30303

Attendees (2)