2017 TASH Conference has ended

Each year, the TASH Conference brings together a diverse community of stakeholders who gain information, learn about resources, and connect with others across the country to strengthen the disability field. This year’s conference theme, “Still We Rise for Equity, Opportunity, and Inclusion,” shows the resilience of individuals with disabilities and their families across the lifespan. Conference attendees will celebrate their passion for disability rights, civil rights, and human rights while exploring inclusive communities, schools, and workplaces that support people with disabilities, including those with complex support needs. Return to TASH website.

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Friday, December 15 • 10:45am - 11:35am
Lessons from the Field: Engaging Families in Research to Improve Outcomes and Services LIMITED

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Limited Capacity seats available

This presentation is designed to report on our findings about family engagement in research from the implementation phase of our Family and Direct Support Study conducted at the Research and Training Center on Community Living (RTC-CL) at the University of Minnesota. Our anticipated results, based upon data gathered from prospective families who declined to participate in the study indicate that the engagement of families is often dependent on the availability of direct support staff, time for participation, and the age of their family member with a disability. As a result of these findings, the research team facilitated focus groups to further understand family's experiences and preferences with regard to participating in research. Based upon these two sources of data, the challenges faced when conducting research with families will be addressed, along with strategies for improving engagement of families in future research.

avatar for Kelly Nye-Lengerman

Kelly Nye-Lengerman

Research Associate, University of Minnesota


Friday December 15, 2017 10:45am - 11:35am
L505 265 Peachtree Center Ave NE, Atlanta, GA 30303

Attendees (10)